Audience Stream: Involvement

Note: There is some overlap in the invovlement audience with the Take Part audience stream. If it seems appropriate (e.g. opportunities to get involved with research) please consider posting on both channels, but tailoring the message according to the specific audience for each channel..

Involvement channels

Channels managed by: Social Media Delivery Group 2


Showcasing the value of participation, involvement and engagement to ensure patients and the public have a meaningful voice in research, by sharing best practice, opportunities and training on involvement and engagement.


The involvement community, including:

  • Patients, carers and members of the public who have an interest in getting involved in research
  • Public contributors - people who are already actively involved in research
  • PPIE leads (leads in universities, other parts of NIHR, other funders and NHS trusts)
  • Researchers looking to get the public involved in their work and studying public involvement
  • International research organisations interested in UK/ NIHR good practice, including those who are part of the NIHR initiated global network for PPIE

Content focus

  • Raising awareness about the value and benefits for patients of getting involved in research
  • Opportunities to get involved, e.g. join committees and other roles that might be promoted on our website or the People in Research website
  • Information on, or examples of, PPIE good practice
  • Examples of the NIHR’s commitment to/progress on patient and public involvement (e.g. blogs, news, training resources from coordinating centres or infrastructure)
  • Raising awareness about the tools NIHR has to aid involvement both for public contributors and professionals  - e.g. People in Research, Learning for Development, The Public Reviewer course etc. 
  • New resources and tools to help people with PPIE e.g. events, guidelines etc.
  • Relevant campaigns

This audience favours real-life examples of PPIE, hearing from a patient/public voice and useful resources e.g. training courses and guidance.


  • Clear and concise language and tone of voice - try to avoid acronyms and jargon
    This channels should appear knowledgeable and informed on the subject of involvement
    The language should feel collaborative, engaging, open and transparent

Recommended content types

  • Editorial
    • Short form articles - showcasing NIHR’s work, or opportunities to get involved
    • Opinion pieces - the learnings from or challenges facing patient and public involvement, new initiatives etc.
    • Personal testimonials  - giving the patient and public experience on involvement in research, demonstrating how NIHR-funded/-supported research has helped change patients’ lives. 
  • Interactive
    • Being offered the opportunity to share their experiences or given their opinion e.g. polls, questionnaires, opportunities


Related pages